The so what life


I’m taking the suckiness out of life with a chronic illness.

My Story


Author of The So What Life blog about thriving with cystic fibrosis


Cystic fibrosis advocate, businesses, college lectures


Coming Soon! A book about raising kids with chronic illness

5 ways to raise awareness about cystic fibrosis during the Five Feet Apart craze

If you’re a part of the cystic fibrosis community I’m sure you’ve heard the buzz surrounding the new movie produced by Justin Baldoni, Five Feet Apart. The movie is about two people with cf who meet/fall in love in the hospital, having to cope with the difficulty of...
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My Whole30 Experience: Cystic Fibrosis Edition

My whole life, doctors have told me to keep eating to keep my weight up. With CF, it is difficult to absorb nutrients, so I've always been small and life has always been a battle to maintain my weight. In some ways, I saw the positive in this. It meant I could eat...
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What adulting has to do with my chronic illness crystal ball

July is a sneaky month, one minute cool days and colder nights give way to long days, heavy air, and sunshine in New England. I always gauge the progression of summer by how close my birthday in early August is, and from that point on summer seems to fly...
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How he knew he wanted to marry me

The other day, my fiancé Kyle and I were laying on the couch talking about our upcoming wedding, in 2 months.  We had recently decided to write our own vows and he was nervously venting about how stressful it would be to get everything he wanted to say out of his...
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How you win

Have you ever watched the fastest people in a marathon or other big race and wondered "how do they run so fast!?" You ogle at how fast their time was, and think "I could never do that."  Today I met someone who could.  My fiancé, Kyle, and I have been waking...
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Dear Mom, thanks for letting me breathe

Mom, thank you for dancing through a world where CF meant the future was uncertain

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How my parents got me to take control of my health

Growing up with cystic fibrosis, or any chronic illness, requires an immense amount of responsibility at an early age. And when I was a kid, the only thing I wanted to be responsible for was the remote control so that I could watch Disney and Nickelodeon cartoons. I...
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The mistakes we make that lead to wrong assumptions 

I recently attended a presentation about ADA accommodations, and something was said that got me fired up.

A well-meaning manager raised his hand and

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Is spring ever coming?

It's been raining in Boston for what feels like months. This time of the year, people start to get pretty frustrated, and you start to notice a lot more honking on your commute to work, as people start to get so sick of the bad weather. No one looks forward to a rainy...
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Why a positive attitude won’t cure you

Being happy-go-lucky is a cornerstone of my personality. When I was younger, and heard about people with cystic fibrosis, or other deadly illnesses, I didn't see myself in them. I knew the life expectancy of cf was in the 30's, and even though that scared the...
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