I’ve gotten comments about how my mom raised me to be so positive. So here is a post that me and my mom came up with:

Here are the five rules she lives by:
1) Always look on the bright side:
My mom always maintained that we must look on the bright side. If I had to go in the hospital it was “Well at least you’ll be feeling better for the rest of the school year!” The rationale for doing my treatments was that it would make me feel better for the rest of the DAY. If I got a new medicine she said “well at least it’s just a pill!” and I just added it to the rest of my pills. Looking on the bright side made everything seem o.k.
2) Never let em see ya sweat, but be honest in the most positive way possible
My mom NEVER let me see her worry. She admits that when I was in the hospital she’d be up all night worrying, or when she hears me coughing at night she is concerned. But I never saw that. It’s ok that she was worried and scared, she’s allowed to be… but the fact that I didn’t know how hard CF was supposed to be made me think it WASN’T hard. However, she did deal with it matter of factly around me. She didn’t give me false expectations, she was honest about how I would feel in the hospital but she didn’t make me afraid when she told me these things. I remember when I was in the hospital with hemoptysis (coughing up blood) I was so scared, and she was probably even more scared. She sat by my side holding my hand comforting me, telling me that a blood transfusion would only help me. She was honest that I might need surgery to stop the bleeding. And I trusted her, I still do, she’s a nurse and she knows what she’s talking about. That trust is important to have when your young and you don’t necessarily know everything that is going on.
3) Stay as healthy as possible (whatever it takes).
My mom was ALWAYS on my back about doing my treatments and taking my pills. Even when I cried about it she was still persistent. She always said “It will only make you feel better” or that if i didn’t do it, I would have to go in the hospital. This was enough to make me shove my nebulizer in my mouth! Sometimes, she even pretended to call the doctor to tell on me! I hated when she did that.. but she was only doing it to keep me healthy, and it worked! Now I know that I have to do my treatments because it will help ME and because she made it a daily necessity, I now see that doing everything I’m supposed to is ABSOLUTELY NECESSARY!
4) Make things fun:
Every doctors appointment was an adventure for me and my mom. Whether we sang on the car ride there (we still do), or went to a fun place in boston, we always had fun. She would get me a gift from the gift shop, or take me to the Enchanted Village (a Christmas display). Sometimes we would go out to eat to Friendly’s or the Hospital Cafe. In the hospital, she brought me games, movies, and crafts to keep me entertained. She would even bring my friends in to see me! While I was doing treatments she would play games with me or just sit and chat with me. Every thing I had to do CF-wise, she made it fun. And this made everything A LOT more bearable!
5) Live your life to the fullest, and don’t live in a bubble:
My mom taught me to “dance like no one’s watching.” She didn’t put me in a bubble because I had CF. I played in the cold, did sports, got dirty, and stayed up late some nights. She never told me I couldn’t do something because I had CF. Even when I missed school for 2 weeks she made sure I was doing my homework and staying on top of things. One time, I was in the hospital for my first formal dance in 7th grade. She wouldn’t let my CF get in the way of living my teenage life. She convinced the doctors to let me out for the night, even though I had just come out of surgery for complications after a sinus surgery. She wouldn’t have done this if she didn’t think I could handle it, and she waited outside the dance for 2 or 3 hours in case anything went wrong, and let me enjoy my formal dance. CF hasn’t stopped me from living life because of my mom, and because of that I am able to remain positive.
And from my point of view, the way my mom raised me pertains to the song “Because you love me” by Celine Dion:

For all those times you stood by me
For all the truth that you made me see

For all the joy you brought to my life
For all the wrong that you made right
For every dream you made come true
For all the love I found in you
Ill be forever thankful baby
You’re the one who held me up
Never let me fall
You’re the one who saw me through through it all

You were my strength when I was weak
You were my voice when I couldnt speak
You were my eyes when I couldnt see
You saw the best there was in me
Lifted me up when I couldnt reach
You gave me faith cause you believed
Im everything I am
Because you loved me

You gave me wings and made me fly
You touched my hand I could touch the sky
I lost my faith, you gave it back to me
You said no star was out of reach
You stood by me and I stood tall
I had your love I had it all
Im grateful for each day you gave me
Maybe I dont know that much
But I know this much is true
I was blessed because I was loved by you

……

You were always there for me
The tender wind that carried me
A light in the dark shining your love into my life
Youve been my inspiration
Through the lies you were the truth
My world is a better place because of you

You were my strength when I was weak
You were my voice when I couldnt speak
You were my eyes when I couldnt see
You saw the best there was in me
Lifted me up when I couldnt reach
You gave me faith coz you believed
Im everything I am
Because you loved me


If you are a CF parent, I hope our “rules” have helped. If you would like to comment or ask my mom anything her email is mamabombo@comcast.net .

Me and my mom being crazy at my cousin’s wedding!

http://thesowhatlife.com