Author: Lauren

If you haven’t seen Trolls yet, save it for a day when you need to be reminded that we do, in fact, choose to be happy or we choose to be miserable. We all have days where we decide to complain about every single thing that happens to us that day, but by the end of this movie you’ll be clapping your hands, dancing, laughing and smiling, I promise. The movie features the unbelievably optimistic and colorful Trolls who live out their days hugging each other, dancing, and singing. They were pretty much me when I got my PICC...

  Do they make a scale that says “FATter instead?” Tonight, I stepped on the scale and was so happy to see that I had finally reached 110 pounds. I know, I know, people will say “what I would do to weight 110 pounds!” but the past month has been filled with a lot of work to get my weight back up to something that resembles healthy and normal. About a month ago, I was just getting over a pretty intense bout of sickness and as I got back into the swing of every day life, I felt 10...

The universe is telling me that I need to start blogging again. In the past few weeks, three people have reached out to me because I/my blog/my writing inspire them. To be honest, these past few weeks I have not felt inspiring. In fact, last night, I went to write a blog about the honest emotions I was feeling during my most recent bout of sickness and I never published it because it was “too negative” and I didn’t think it would embody the spirit of this blog:  “a blog about staying positive, defining yourself, and remaining strong throughout it...

A lot of friends and family members have been wondering how I’ve been doing these past few months since starting Orkambi. This month will mark my 6 month anniversary since starting Orkambi so now is the best time for the update! I was hesitant about making any drastic claims about Orkambi within the first few months (besides my incredible FEV1 improvement)  because a lot of CFers and their families follow me on facebook and on my blog and I’m not so into comparing stories on drugs. At the beginning, I joined all these Orkambi groups and wanted to hear EVERYTHING, and I quickly...

If you had told me, when I was in high school, and even in college, that at age 25 I would be going for my Masters and looking forward to a long, long life, I wouldn’t have believed you. Age 25 was a blur to me, mired in uncertainty and sickness. After graduating from Stonehill in 2013, I assumed I would do what I can, work for as long as I could, and not waste much time doing anything beyond that. Investing in my future wasn’t an option… because I felt as though I probably wouldn’t have much of one. Although...