Author: Lauren

A word about Hope

Hope is a scary thing. Some argue that positivity breeds false hope. That thinking too much on the bright side will only leave you let down. I don’t necessarily believe that… but I DO believe in a thing called Rhope… that is Reasonable Hope. Rhope is when you believe that what you are hopeful for can be accomplished if YOU do something about it. Rhope isn’t praying for an easy way out, its MAKING an easy way out. Rhope isn’t wishing at 11:11 for a miracle, Rhope is believing that you have the ability to produce a miracle. But...

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Lets be Happy Today

My mom’s favorite quote is “Happiness is a decision.” You can decide to be happy… or you can decide to be miserable. No matter what your situation, whether your stressed out from school or work or in my case having CF, if you choose to be miserable, it’s going to be a lot worse. I decide almost every day to be happy, you can tell by the smile plastered across my face. I’m too busy enjoying everything life has to offer to be sad, or stressed, or miserable. So decide to be happy today. Enjoy the sun, the flowers,...

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CF Hero

I’d like to ask you to take some time to vote for a real CF hero in the Apple Bees Heros contest. She has defied the odds and has run a half marathon all raising money for CF! She even has her own organization dedicated to “rocking CF” and raising awareness. She is truly a hero and I admire and respect her for everything she does! Her name is Emily Schaller. PLEASE CLICK HERE to vote for Emily!...

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The Past: My First Admission

I was lucky to have gone in the hospital a full 4 years after my diagnosis. I was seven years old and in the first grade. My cleanout was scheduled for the first two weeks of school. It didn’t really hit me too hard that I would be missing my first two weeks in the big school, with a full 6 hour schedule. I had to do what I had to do. I was in a double room with a little girl who loved to watch Nickelodeon. I was shy, and never said much to her. The hospital was scary. Getting my picc line placed was frightening. I didn’t know what was happening, it was a first time for everything. But I had my mom right by my side the whole time to ease my fears. I got to pick a new color to wrap my picc line in every couple days. The hospital turned out being more fun than expected. I had visitors almost every day, and I got so many cards and gifts. I had tons of stuffed animals once I went home and all sorts of things to keep me busy. I kept a journal and had everyone sign it when they came in. My favorite place was the “Activity Room” where I could go and play with other patients and we would show off our...

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The Past: The Diagnosis

This is me, at age 3, the day I went into Children’s Hospital Boston to get diagnosed with CF. I had an awful cough as a kid, and I was tiny for my age. So we went to get tested for CF. My first memory as a kid is the sweat test. I remember it feeling like my arm was being electrocuted and crying the whole time. I had no idea what this was for. I had no idea what cystic fibrosis was! I just thought I got to take my dolls on an adventure into boston, and I got to see the big Whale mural that we drove by on the highway. But the sweat test said I had CF. And that was the day our family’s life changed forever. We were already dealing with the fact that my brother had brought home lice from school, and of course the whole family got it when we had our weekly TGIF tv night watching our favorite ABC sitcoms on mom’s bed. It was around christmas, and my mom said she wouldn’t come to christmas at my grandmother’s house, cause she didn’t want to spread the lice, and she was so shocked by the recent news. But our family told her we needed them at this time, they were our family. So we came, all my cousins had their hair...

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